I used a wheelchair today in the supermarket. Although I used a mobility scooter when we were in the Peaks, this was the first time I have used an actual wheelchair during this phase of illness. The last time was 20 years ago, more or less.
I guess it’s good that they provide them for customers. And it was good to have such a helpful child pushing me round and doing all the physical stuff. What a blessing a helpful child can be! But I didn’t like it – the stares, the comments. Not rude comments, mind you, it’s just that people who might usually ignore you feel obliged to say something, at least I think that’s what is happening. I think they’re wondering why someone who doesn’t look particularly ill or infirm requires a wheelchair. It’s not everyone, of course, just a few perhaps ill-mannered folk who never learned that it’s rude to stare. But even if the vast majority ignore you, it’s the handful who don’t who make it awkward. I felt ashamed of my illness. Ashamed that my 11-year-old daughter is taking on the role, albeit temporarily, of caregiver. That’s my job. And if I don’t have the role of caregiver, what do I have? I really don’t like to be the centre of attention, least of all when I’m feeling low. Which I was, by virtue of needing the bloody wheelchair in the first place. There’s no doubt about it: people look at you differently if you’re in a wheelchair
I felt petty and childish when I asked God, later, when I will get to live my life. Illness has to be one of the loneliest ways to go through life. In my teens I spent a lot of time alone because of this illness and because I missed so much school. I was also depressed and very wary of pretty much everyone, so it was hard to maintain friendships. Then in my twenties, although physically I was healthy, I was deliberately isolated by my controlling, much older and abusive (so-called) husband. It’s one of the things that abusers do. They isolate their victims so that they can maintain the high level of control (and get away with it).
Eventually I divorced him and later met my dear Frank. Last year I went through EMDR and although it unlocked many barriers that trauma had created, I’m still unwell and probably worse, physically, than a year ago. I turn 40 next year and I am still waiting to be well enough to have a proper job, for the sake of flicking strawberries (tried to come up with something less rude than the usual…)
Dear God, I know they say life begins at 40 but I never thought anyone meant it literally. I felt like crying earlier, which is progress, because usually I’m so detached I don’t feel much at all, but I still didn’t actually cry. How pathetic – to feel like crying but not even being able to do that.
If I were a twitterer I’d probably create a new hashtag: #effinguseless
Still, the great thing about reading your bible every day is that you can bring to mind appropriate verses. So here are a few words from the Psalms that remind us that struggle is universal, to some degree, and that we’re never alone, however much it feels like it (thank you, God, for Your Word):
These things I remember as I pour out my soul…
Why are you cast down, O my soul,
and why are you disquieted within me?
Hope in God; for I shall again praise him,
my help and my God.
From Psalm 42:4,5 (NRSVA)